Tag Archives: diabetes

Balancing Diabetes, Celiac disease and Parisian bakeries

Today is #dblogcheck day. The idea is to leave a comment on every diabetes blog post
you read throughout the day – even if it’s just to say “Check!”. It allows everyone who
contributes to the diabetes online community to know that their voice is being heard.
You can read more about it on A Consequence of Hypoglycemia.

After my celiac diagnosis in 1998, I put diabetes management on the back burner for a while.  The learning curve is steep when you first have to cut out all traces of gluten from your diet so for a few months I ate whatever – as long as it was gluten free – and didn’t worry quite as much about matching the insulin dose to what I was eating. I found I could only master so many skills at one time!

Thankfully I did learn how to eat well while cutting out the gluten completely and after 8 difficult months, including a 30 pound weight gain and a 5% HbA1c increase, I felt comfortable enough with managing both diseases that things came back into order relatively quickly. I lost the extra weight over the next year and within 6 months, I had my A1c back under 7%.

Once things were back on an even keel, I realised that these two diseases are, in fact, manageable together. (Not always easily, not without frustration, but definitely made easier with the support of online communities!) I came to realise that the celiac dictated what I ate (or rather what I didn’t eat) where as the diabetes had more of an influence on the quantity of food/carbs and the timing of my meals.  And once I was on an insulin pump even the quantity and timing weren’t as limiting as they once were.

The main challenge that remained was counting the carbs (especially in the relatively high carb gluten free alternatives to some normally gluten-full food choices) and then of course matching my insulin doses to my carb intake.

I was diagnosed with diabetes and CD 18 and 16.5 years ago, respectively and much has changed in the world of gluten free food choices since then. I still cook most of my own meals from ingredients that are naturally gluten free, but I definitely eat store bought gf bread & pasta, some home-made cookies & cakes and the odd real treat from a gluten free bakery.

The offer of good gluten free food choices is still greater in english speaking countries although it has also been improving by leaps and bounds here in France. In the last 3 years, no fewer than four gluten free bakeries/Cafés/restaurants have opened in my neighbourhood. Not just “somewhere” in Paris but within easy walking distance of home. Helmut Newcake, Thank You, my Deer, Bears and Raccons and Chambelland each have a slightly different and therefore very complementary offer in gluten free wares.

And because sometimes I do venture beyond my own neighbourhood, the gf options across the city are also increasing: Helmut Newcake’s second location, Noglu, Biosphère.  I have tested most and they all get my full marks of approval. They each are the kind of place that anyone could buy real french pastries & bread or eat a meal and not realise that what they are eating contains absolutely no trace of gluten. These are places you can go with a group and those who don’t have to eat gluten free will neither complain about the taste and texture, nor about the price when compared to a “regular” french bakery in Paris.

All of these delectable cafés make for great temptation for high-carb treats. I don’t indulge often, but it’s hard to go in to buy a loaf of bread and not come out with something extra delicious – just because I can. I guess I’d better keep up this running routine to burn off enough calories and justify my sweet cravings!

Now if you’ll excuse me, I need to go indulge in a tartelette au citron meringuée. I’ll leave you with something to drool over. Can anyone guess the carbs in this baby? tartecitronmeringuee2

Spare a Rose, Save a Child

Déjà février ?! La saison des galettes est finie. Mes filles sont satisfaites car elles ont eu 2 fèves chacune sur 4 galettes mangées à la maison (2 sans gluten et 2 avec). Mes glycémies sont contentes car je n’ai plus à gérer les pics inévitables après chaque petit morceau de galette.

On arrive du coup dans la saison de la Saint Valentin. Mes filles sont contentes car nous allons faire des gâteaux en forme de coeur à la maison.  Pour la glycémie ça va – je sais mieux gérer le chocolat que la frangipane. Par contre, il n’y aura pas de bouquet de fleurs pour marquer l’occasion. Voici pourquoi :

Il y a un autre focus autour de la Saint Valentin en ce qui concerne le diabète.  Un groupe de blogueurs américains a élaboré la campagne “Spare a Rose, Save a Child” pour lever des fonds dans le but d’aider les enfants et les jeunes des pays ou l’accès à l’insuline est inadéquat. L’idée est simple : en offrant 11 roses au lieu de 12 le jour de la Saint Valentin et en faisant un don équivalent à la valeur de la dernière rose, on peut financer l’accès à l’insuline pendant un mois pour un enfant dans un pays en voie de développement. Remplacer le bouquet de roses en entier par un don est l’équivalent d’un an d’insuline pour un enfant qui en a besoin pour survivre.

Ces dons vont au programme “Life for a Child” de la Fédération internationale du diabète (FID), qui oeuvre dans des pays en voie de développement où l’accès à l’insuline, les matériaux pour tester sa glycémie et l’éducation ne sont pas accessible à tous.

Voici comment participer :

– Faire un Don
La campagne se déroule du 1er au 14 février. Vous pouvez donner en une fois ou établir un don mensuel sur l’année via prélèvement automatique.  Cliquez ici pour faire un don.

– Partager l’information sur la campagne
Parlez-en autour de vous. A vos proches et sur les réseaux sociaux. Au sein de la communauté diabète et en dehors. Cliquez ici pour plus d’informations sur la campagne “Spare a Rose Save a Child”.

Il est facile de se plaindre des chercheurs qui n’arrêtent pas de guérir le diabète des souris mais jamais des humains. Des progrès sur le pancréas bionique bien lent. De la sécu qui ne rembourse pas les lecteurs de glycémie en continu ni les lecteurs de glycémie flash. Mais nous avons de la chance de vivre en France, en Europe, dans des pays où on ne meurt pas à cause d’un manque d’information, d’éducation et surtout d’un manque d’accès à l’insuline qui rend la vie possible quand on a un diabète de type 1. Voici l’opportunité d’aider ceux qui n’ont pas la même chance que nous.

Diving in

I am not a writer. I’ve been wanting to start a diabetes blog for a long time but am a little daunted by the fact that I will have to actually write blog posts! But what the heck, I’m throwing myself in (somewhat strategically just after the 5th annual dblog week – maybe by this time next year I’ll actually have to courage to participate!).

That said, ever since my diagnosis with diabetes and even more so after the CD diagnosis, I have always made an effort to connect with other people who live with these conditions, online and in person. Over the past year or two I’ve gotten more actively involved in the diabetes online community (#DOC) and despite my own reservations, starting a blog seems like the logical extension of my interactions on twitter, on forums and through comments on other D-blogs.

I already know from experience that sharing stories can help both the storyteller and the “reader”. I hope that in sharing my story of living with diabetes and celiac, I can connect with others who have similar experiences, who are looking for encouragement about living well with either one of these conditions, and who can inspire me to do the same.

You can read a little more about me here.

Thanks for stopping by to check out my blog!